Senior Resources

  1. TAF Cares is a nonprofit that provides financial support to people who are having difficulty affording their necessary medications. They sometimes have a waitlist for providing financial support depending on your diagnosis. You can find out more information and to see if they are accepting patients who have Parkinson’s Disease at this link:  https://tafcares.org/patients/
  2. Abbvie has a Patient Assistance Program which offers financial support to cover the cost of some of the medications for Parkinson’s Disease.  Here is the link to search for the medication that you are on, and then find out what qualifications you will need to meet and the process for application for support.  https://www.abbvie.com/patients/patient-assistance/program-qualification.html?utm_medium=psearch&utm_campaign=rep_2021&utm_source=bing&utm_content=pa&utm_term=learnmore&&msclkid=8efb2eba0112125b23484d2cad8a6b5c&gclid=CMWcnNud8_sCFY_8swodXgkNUA&gclsrc=ds
  3. RetireGuide® created a resource with current senior discounts across the nation. Senior benefits and discounts can help you make the most of your retirement dollars. Knowing what’s available to you can help you plan your retirement finances more effectively and efficiently. And it can ease some of the stress of transitioning to retirement. You can find this information here: https://www.retireguide.com/guides/senior-benefits-discounts/
  4. MedWish, a national organization, has a local facility  to obtain medical supplies such as wheel chairs, walkers, commodes and bath seats.   OPFNE is a registered agency and can help you obtain assistance.   To apply for items contact admin@ohparkinson.com   Include name, address, phone and email plus items you are looking for.   You will be contacted by and OPFNE  coordinator.
  5. Paying for Senior Care, Understanding your options for affordable senior living. https://www.payingforseniorcare.com/parkinsons/financial-assistance
  6. Senior Advice: Information regarding various living options for seniors. https://www.senioradvice.com/home-healthcare
  7. https://aging.com/
  8. area and online resources for funding, advocacy and organizations
  9. Nutrition resources from Dr Erin Presant   2023 Symposium
    MOY Med Diet
    Choosing Brain Healthy Options

These listings are provided as a service but do not imply an endorsement or recommendation by OPFNE

Local/State Organizations

    1. Support Groups
    2. Exercise Classes
    3. Western Reserve Area Agency on Aging: Our services and programs give older adults and persons with disabilities access to information, assistance, consultation, and long-term care services and support. The Western Reserve Area Agency on Aging (WRAAA) is a private nonprofit corporation. We were organized and designated by the State of Ohio to be the planning, coordinating, and administrative agency for federal and state aging programs in Cuyahoga, Geauga, Lake, Lorain, and Medina counties.  Contact us at: 800.626.7277 or https://www.areaagingsolutions.org/
    4. Parkinson’s Foundation Great Lakes makes life better for people with Parkinson’s disease (PD) by improving care and advancing research towards a cure. Whether you are newly diagnosed with PD or have been managing it for years, are a care partner, family member or friend of someone with PD, we are here to help you. More information can be found at https://www.parkinson.org/GreatLakes
    5. The following local and state organizations have supported OPFNE with sponsorship at our events. This has enabled OPFNE to provide educational programming and grants to the local Parkinson’s Community.
      1. Pharmaceutical and Medical Technology Companies
        1. Abbvie
        2. Acorda
        3. Boston Scientific
        4. Great Lakes Neurotechnologies
        5. Kyowa Kirin
        6. GE Healthcare
        7. Medtronic
        8. Supernus
      2. Exercise and Therapy Organizations
        1. Amalia Foundation
        2. Baldwin Wallace University Speech Clinic
        3. Case Western Reserve University School of Medicine
        4. Cleveland Clinic Center for Neurological Restoration
        5. Cleveland State University Speech Clinic
        6. Come Dance with Me
        7. InMotion
        8. Kent State University, School of Health Sciences
        9. Polaris Speech and Neurological Rehabilitation
        10. Rock It Out
        11. University Hospitals
        12. Yoga Reach
      3. Senior Living and Care Companies
        1. Danbury Senior Living
        2. Right at Home
      4. National Parkinson’s Organization
        1. Parkinson’s Foundation
    6. Additional local business who report providing resources and services for people with Parkinson’s Disease
      1. Visiting Angels
      2. Visiting Angels
      3. Fox Rehab
    7. SPRY SENIOR
      1. Experience older adult and senior healthcare completely reimagined.We believe your best life starts with connection – to healthcare, to wellness, to community.
      2. By bringing together passion, purpose, and inspiration our goal is to create a community designed exclusively to stimulate and care for our seniors.
      3. At Spry Senior, we are committed to improving the primary care experience for seniors. We offer longer appointment times, free transportation to appointments within a ten mile radius of each clinic, same-day access, and educational and social activities in our community rooms at our Brook Park and Strongsville locations. We are committed to addressing social determinants of health within our community to meet the needs and improve patient quality of life. Check out our website for events and call to schedule a visit!
      4. We have three convenient locations:
        1. Solon
          5855 Harper Road
          Suite A
          Solon, OH 44139 (in the Lumina office)
        2. Brook Park
          14770 Snow Road
          Brook Park, OH 44142
        3. Strongsville
          15201 Pearl Road
          Strongsville, OH 44136
      5. Website: www.sprysenior.com
        Phone: 440-592-6200
        Email: Info@sprysenior.com
    8. 24th Annual Parkinson Symposium Presentations
      Dr Sarah Whittingham: Power the Positive; flip the script on Parkinsons.   An inspirational  presentation from the 2024 Symposium           Sara Wittingham's Video

      David Zid: Brain and Body Connection: Exercise your body and mind!    David Zid's Video

Find Rehabilitation Clinicians

Find Physical, Occupational or Speech Therapist Clinicians: It is important to find a clinician who specializes in working with people with Parkinson’s Disease. Ask if your clinicians have experience with Parkinson’s Disease prior to scheduling your appointment.

  1. University Hospitals:
    1. Neurological Rehabilitation with locations
    2. University Hospitals  Outpatient PT and OT locations
  2. LSVT Big and Loud is a program that certifies Physical, Occupation and Speech Therapists in their intensive program specifically designed for people with Parkinson’s Disease. Find a therapist in your area here:
    1. https://www.lsvtglobal.com/LSVTFindClinicians
  3. PWR!Moves trains Physical and Occupational Therapists for teaching group and individual settings. Find information about PWR!Moves here:
    1. https://www.pwr4life.org/professional-directory/?zoom=15&is_mile=1&directory_radius=100&hide_searchbox=0&hide_nav=0&hide_nav_views=0&hide_pager=0&featured_only=0&feature=1&perpage=10&keywords=&address=44087&directory_radius=100&center=41.3125528%2C-81.4388858&address_type=&category=0
  4. SPEAK OUT! is an intensive Speech Therapy program specifically for people with Parkinson’s and Parkinsonianisms. Find a provider in your area here:
    1. https://www.parkinsonvoiceproject.org/providers.aspx
  5. Often, Speech Therapy Clinics at Universities in the area may offer free or reduced cost therapy. You’ll work with a student who is directly supervised by a license Speech Language Pathologist.  Find out about services offered at the various clinics in the Northeast Ohio Region.
    1. Baldwin Wallace University Speech Therapy Clinic (Link: https://www.bw.edu/centers/speech-clinic/)
    2. Kent State University Speech Clinic : https://www.kent.edu/ehhs/hs/spa/speech-hearing-clinic
    3. Akron University: https://www.uakron.edu/sslpa/asc/
    4. Cleveland State University: https://health.csuohio.edu/speech-hearing-clinic/speech-and-hearing-clinic
    5. Case Western Reserve: https://case.edu/ech/articles/c/cleveland-hearing-and-speech-center

Research and Advocacy

  1. The Michael J Fox Foundation succeeds in proving the most robust and up-to-date information regarding current research, breakthroughs and all advocacy opportunities there are related to living with Parkinson's Disease.  Read the latest information here: (https://www.michaeljfox.org/contact-your-policymakers)
  2. Kent State University – “Our current research examines the benefits of exercise and movement training on motor function in individuals with Parkinson's disease and multiple sclerosis.” With Angela Ridgley https://www.kent.edu/ehhs/hs/exph/motor-control-lab
  3. Cleveland Clinic – “Currently, our center offers clinical trials examining the efficacy and safety of pharmacological, non-pharmacological (such as exercise therapy), and surgical (such as deep brain stimulation and gene therapy) treatments. In collaboration with colleagues from Cleveland Clinic Lerner Research Institute, several translational research projects are underway in neurophysiology, genetics, transcranial stimulation, and biomarkers.” https://my.clevelandclinic.org/research/neurological/neurological-restoration
  4. University Hospitals – “Along with Case Western Reserve University School of Medicine, the center is working to refine current techniques and discover new treatments. Areas of investigation include:
    • The establishment of the Case Western Reserve University Clinical and Translational Science Collaborative’s (CTSC) Parkinson’s disease phenotypic and genotypic registry to examine the genetic effects of the disease.
    • Participation in the national BrainGate 2 study, which is examining the potential and ability of those suffering paralysis to control a computer cursor and other assistive devices with their thoughts.
    • A Phase 4, open-label, efficacy and safety study of APOKYN® for rapid and reliable improvement of motor symptoms in Parkinson’s disease.
    • A National Institutes of Health-sponsored study examining functional magnetic resonance imaging (fMRI) investigations of the effects of deep brain stimulation in dystonia.
    • Functional magnetic resonance imaging (fMRI) investigations of Parkinson’s disease and the brain network changes involved in changes in the handling and perception of other parts of the body for patients with Parkinson’s disease.” https://www.uhhospitals.org/uh-research/department-research/neurology-and-neurosurgery-research/parkinsons-movement-clinical-research
  5. MetroHealth – To search the database to see if they have available studies involving people with Parkinson’s Disease, visit https://www.metrohealth.org/research/clinical-trials
  6. Parkinson’s Foundation Aware In Care Kit - The Aware in Care kit is filled with useful tools and information to help a person with Parkinson’s during their next hospital visit, planned or unplanned. Download free contents, order a physical kit or connect with an Aware in Care Ambassador to learn more or to have them speak at your event at this link: https://www.parkinson.org/resources-support/hospital-care-kits

Connect with others with Parkinson’s Disease

  1. Michael J Fox Buddy Network – This is an online resource for people with Parkinson’s Disease and those who support them. It is a social platform where you can connect with others with whom you have similarities as well as ask questions. Learn more here: https://parkinsonsbuddynetwork.michaeljfox.org/
  2. Parkinson’s Foundation PD Conversations - When you join a discussion group, you’ll connect with other people who share your same interests, challenges and hopes. Our Helpline will be on hand to answer your Parkinson’s questions and support you along the way.  To see what all this community has to offer, visit this link: https://www.pdconversations.org/s/

Care Partner Resources

  1. As a care partner, it’s important that you have resources to support you in your role as Partner in Parkinson’s or Care partner. The APDA has a resource with various links that may be beneficial as some point throughout your loved one’s journey with Parkinson’s Disease. Becoming a Care Partner
  2. The Parkinson’s Foundation also has a page for Care Partners of people with Parkinson’s Disease providing resources for various stages in your journey as well as tips for supporting your loved one from afar. https://www.parkinson.org/resources-support/carepartners
  3. The Michael J Fox Foundation has the Buddy Network which can help you connect to other Care Partners in your region or throughout the country. Find more information about the Buddy Network here: https://www.michaeljfox.org/build-connections-parkinsons-buddy-network

Early/Young Onset

  1. The Michael J Fox Foundation has several webinars, booklets and helpful blogs that provide information and considerations for people who are younger when initially diagnosed with PD. (https://www.michaeljfox.org/news/young-onset-parkinsons-disease)
  2. David Phinney Foundation Resource page has videos and previous educational events with topics relevant for Early Onset. They also have a Young Onset Alliance and Ambassadors whom you can connect with.  (https://youtu.be/906guET4izE)
  3. This blog post from the Parkinson Foundation describes 10 resources for Young Onset people with Parkinson’s Disease: (https://www.parkinson.org/blog/tips/young-onset-resources)
  4. The APDA also has a blog with several resources for people with Young Onset PD. (https://www.parkinson.org/blog/tips/young-onset-resources)

Newly Diagnosed

  1. The Parkinson’s Foundation provides many resources for people who are newly diagnosed including a Newly Diagnosed Kit.  You can see this introductory video and find resources here: https://www.parkinson.org/living-with-parkinsons/new-to-parkinsons
  2. The Michael J Fox Foundation provides a guide to support you through your journey from diagnosis of Parkinson’s Disease and beyond. The information here is helpful in answering the most frequently asked questions shortly after a new diagnosis. https://www.michaeljfox.org/resources-people-newly-diagnosed-parkinsons

General Parkinson’s Information

  1. The “Understanding Parkinson’s” section of the Michael J Fox Foundation provides an extensive overview of the symptoms, possible causes, medications, and treatments as well as related conditions.  The video above explains the symptoms, diagnosis and treatments for Parkinson’s Disease.
  2. InMotion is a local nonprofit organization in Beechwood specialized in providing free, quality education and exercise for people with Parkinson’s Disease.  They offer an introduction: PD 101 and subsequent online 201 course at their facility. Find out more about the educational resources available below. https://beinmotion.org/parkinsons-programs-cleveland/.
  3. Whether you are a person with Parkinson’s Disease, a loved one or a friend who would like to provide support, the Parkinson Foundation provides many resources related to symptoms, diagnosis, treatment and living well with Parkinson’s Disease.  (https://www.parkinson.org/understanding-parkinsons) The Parkinson’s Foundation also has links to various resources including their helpline, hospital kits, online community to meet others with PD as well as an online Library of pre-recorded and live educational sessions of your topic of interest. (https://www.parkinson.org/resources-support).  Also, an easy to read guide for exercise and movement can be found here: https://www.parkinson.org/blog/awareness/exercise-recommendations. Parkinson’s Foundation “Store”  To order free resources from the foundation to be shipped to your house.
  4. The American Parkinson’s Disease Association (APDA) is a resource for live and recorded educational talks for People with Parkinson’s and their families. ( https://www.apdaparkinson.org/upcoming-events/). They also provide guidance to exercise and movement in their booklet here: http://ohparkinson.com/wp-content/uploads/2022/04/APDA1703-Be-Active-Beyond-D5V2-4web-exercise-book-2022.pdf
  5. The Brian Grant Foundation provides resources and information to live your life well with Parkinson’s Disease. There are many recipes that accompany information regarding nutrition and exercise to support living empowered and active lives. (https://briangrant.org/)
  6. The Davis Phinney Foundation is another online resource which includes a Parkinson’s 101 (https://davisphinneyfoundation.org/resources/) section with various information as well as virtual webinars, educational events, and resources for people with PD. The topics are organized nicely at the bottom of the resources page for easy access. (https://davisphinneyfoundation.org/resources/)
  7. Staging is typically only discussed for the purposes of research.  It is often not reliable for the general Parkinson’s Population due to the large variability and varied progression of Parkinson’s Disease from one person to the next. If you’d like to find out more about staging Parkinson’s Disease, The Parkinson Foundation: https://www.parkinson.org/understanding-parkinsons/what-is-parkinsons/stages and the APDA are two resources for information about staging.  https://www.apdaparkinson.org/article/stages-in-parkinsons/