Speakers List & Resources

The Assistance Fund is an independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their copayments, coinsurance, deductibles, and other health-related expenses. We currently manage more than 70 disease programs—each of which covers the FDA-approved medications that treat a specific disease. Since our founding in 2009, The Assistance Fund has helped nearly 125,000 children and adults access the treatment they need to stay healthy or manage a life-threatening, chronic, or rare disease. Call or apply online for assistance!

Western Reserve Area Agency on Aging

Acupuncture ( Ted Gannon UH Hospital ),

Dr. Jay Alberts, PhD, CCF Update on a Number of Parkinson’s Related Research ProjectsDr. Brian Appleby, Neuropsychiatrist, UH Dementia & PD

Dr. Kristin Appleby, PD Neurologist, Center for Neuro-Restoration, Cleveland Clinic - Medina Offic Dr. Arman Askari, M.D. "Life with Parkinson's" (He was a speaker at 2019 Ohio Parkinson Foundation NE Region Symposium). Contact: jamie.askari@yahoo.come. Email: applebk@ccf.org

Jessy Barron, Fairhill Partners Building Better Caregivers Program

Shelly T Benhaddouche shelly.benhaddouche@abbvie.com
ABBVIE - guest speaker virtual and zoom presentations are available with a dr. and patient contact Shelly as listed
216-618-5277

Stephanie Callander - Stephanie Callander earned her bachelor of arts degree and a multiple subject teaching credential from California State University, Long Beach. Years later she earned her second bachelor’s degree in Communicative Disorders and Deaf Education from Utah State University and then her master’s degree in Communication Sciences and Disorders from Chapman University. Stephanie has been an active member within the Parkinson’s community. On two occasions she was a guest speaker for PMD Alliance at their Renew Retreats, providing education about the benefits of speech therapy for people with Parkinson’s. She is a guest lecturer at Chapman University, teaching graduate students about Parkinson’s disease and the SPEAK OUT!® therapy program. During her years at the hospital, she held quarterly information sessions throughout the community. These sessions provided education on how speech and swallowing are affected by Parkinson’s and what can be done to strengthen the musculature for speech and swallowing.

Shari L. Cartwright at Acorda Therapeutics: scartwright@acorda.com

Amy Chan, PT, CCF Physical Therapy and PD 216-445-0696

Dwyer Conklyn, Owner DCB3 Music Therapy Rehab Services for Those With PD Using Music

DBS - Lisa Wunderle - 614-832-4429

Dr. Susan Darling, DO CCF Dietary Recommendations To Lower Inflammation for PD

Fred Discenzo - Come Dance - 440-227-9159

Colleen Gast – Menorah Park – Big and Loud therapy, 216-595-7345

Nathan Gradishar, Hospice of Western Reserve Self Care & Self Compassion

Lori Gum, Regional Director Parkinson Foundation, Great Lakes Chapter Update on that organization

Dr. Steven Gunzler, UH Neurologist Parkinson overview and Research Update on his Projects

Kristin Harrison, Adamas Pharmaceuticals kharrison@adamaspharma.com - Support Group Invite for PWP

Tim Healy CNS Sales Specialist Kyowa Kirin North America Mobile: 440-666-3308 timothy.healy.b7@kyowakirin.com

Richard Huckabee rjhuckabee1faith@msn.com- Richard Huckabee is a retired Executive Manager. He was diagnosed with Parkinson Disease in February of 2013 and started a new journey in his life. He is an avid traveler, hiker, and amateur photographer. Richard says he’s living well with his disease due to the grace of God, along with his community of family, friends and doctors. Richard has participated in many PD related research studies and has added exercise to his daily routine to stay healthy. Richard has a passion to serve his community; he and his wife serve as research advocates for the Parkinson’s Foundation, and Richard is an Aware in Care Ambassador, along with serving on a number of other PD committees. Richard continues to inspire People with Parkinson’s to “Get Better Every Day”! His daily Mantra is “Every Day I Fight”!

Tricia Honn, CCF Speech-Language Pathologist Voice Therapy

Emily Jennings, Asst. Professor, Cleveland State University Speak Out! Live With Intent Program for Those With PD

Gayle Kustin and Ellen Richmond How to Prepare for Going on Cruises for Those With PD

Amy Larocca Polaris Parkinson Community and Speech therapy 330 227-4656 amy@polarisspeech.com

Dr. James Leverenz, MD CCF PD and Lewy Body Disease

Dr. Joseph Little, Chiropractor Brain Center Rehab Therapies

Carolyn Lookabill Carolyn.lookabill@mcgregoramasa.org 216-268-8461
Topics:
1. “Beginning the Caregiving Journey-the First 10 steps” is 55 minutes with an additional 5 minutes for questions and answers.
2. “The Aging of Greater Cleveland-You Might just be surprised” is 20-30 minutes long. The content is based on the upcoming projections based on the 2030 census. There will be a significant impact on the way we live our lives. We know that there will be more people over age 60 than under age 18 for the first time in history. Over half of all individuals will be over age 50 and half of them will be caregivers. In reality, there are 11 areas of the country where this is already happening today. Cuyahoga County is one of them.

It is designed for someone who is a caregiver to an older loved one or adult child.

LSVT Global - Anna Maria - Phil Halstead 330-954-7177

cjmalone@kent.edu, Healing Stanzas Kent State University Caring for Our Minds and Bodies through Reflective Writing

Krystal Martin, Memory Care Director, Maplewood at Chardon Senior Center Dementia and PD

Dr John Morgan - Dr Morgan is a professor of neurology at the Medical College of Georgia in Augusta, GA. He is also a board-certified neurologist specializing in movement disorders. Dr Morgan earned his MD, and later his PhD in neuroscience, from Medical College of Georgia in Augusta. He completed both his residency and fellowship in movement disorders at the University of Virginia in Charlottesville, VA. He completed a fellowship in Parkinson’s disease and movement disorders at the Medical College of Georgia. As a resident, he was presented with the Virginia Neurological Society Resident Award.Dr Morgan has published 165 articles. His research focuses on neurogenetics of Parkinson’s disease and Parkinson’s disease in people of African ancestry. He has been the keynote speaker at many symposiums and has spoken at many congresses on various topics in Parkinson’s disease.

Kwangme Park kp@flmtherapy.com - Kwangme Park, also known as “ KP”, is originally from South Korea. She received her Occupational Therapy degree from Cleveland State University. She has been practicing occupational therapy in a hospital and a skilled nursing home setting for over 20 years, and her passion is working with older adults and assisting them to live their lives to the fullest in their home setting. She specializes in Lymphedema treatment and LSVT BIG exercise for Parkinson’s and other neurological conditions. She is also a certified fall prevention specialist. She has been practicing yoga for a number of years, is a marathon runner and exercises intensively with CrossFit. As she has been exercising most of her life, she educates and empowers her clients the importance of health, quality of life and meaningful life through her occupational therapy practice.

Dr. Shnehal Patel, Neurologist Ohio Health Physicians Finding Options for Advanced PD

Shalom Plotkin, Right at Home How to Prevent Falls

Jennafer Rabuzzi, MS,RDN UH Nutrition and PD

Dr Angela Ridgel, Assoc. Professor Exercise Science, Kent State University Update on Her Parkinson Related Research Project

Dr. David Riley, InMotion and independent Update on PD and research

Rock Steady Boxing ( Beth Koeberle In Motion ),

Ben Rossi, InMotion and ATP Revolution Performance Exercise for Brain Change

Jackie Russell, Caregivers Workshops and PD exercise

Taylor Rush, PhD CCF The Role of Psychology Plays With Parkinson’s Treatment

Samantha Sathre Basics of Dementia 234-284-2754

Molly Scott, RN University of Toledo PD and Management of Off Episodes

Cathe Schwartz, CEO InMotion Update on InMotion

Daniel Seinke, Attorney Daniel P Seinck Co., Advocates in Aging Estate Planning and Getting Good Care

Senior Scams ( Info. from the Ohio Attorney General Office ),

Alice Sigley, Medical marijuana card 330-418-3973

Dr. Assef Shaikh, Neurologist UH Recognizing Off Periods in PD

Shannon Shaffer, CNP UH Sleep Disorders and PD

Dr. Robert Smith, Metrohealth Psychology Dept. Resilience in 2021

Star Therapy – Speech and Language Therapy 440-561-0696 (speech and swallowing)

Dr. Andrew Stalker, Neurologist at NeuroCare Center, Canton, Ohio.

Kathie Stull, Amalia Foundation Exercise Classes for PD

Darlene Sullivan, Owner Canine Partners for Life Service Dogs for Those With PD and Others With Physical and Cognitive Disabilities

Lynne Taylor & David Lea – Occupational Therapist, Cleveland Clinic Driving Program 216-692-7684

Dr. Irina Todorov, CCF Wellness Institute Integrative Approach to Parkinson’s

Dr. Ben Walter, Neurologist CCF DBS, Focused Ultrasound and Advanced Procedures

Ellen Walter, CNP CCF Non Motor Symptoms of PD

Dr. Solomon Zaraa, DO, Psychiatrist for Compassionate Cleveland Medical Cannabis

David Zid, Exercise for PD

Resources

Speakers (alphabetical by name or topic)

Aging and Senior Care Resources for Communities in Ohio